good morning today we are going to give you some coping advice
Coping with Lupus
Successfully managing lupus starts with awareness: awareness of your particular symptoms and how your illness affects you; awareness of what you can do to prevent flares, and what to do if you do experience a flare; awareness of any changes in symptoms or physical conditions that could suggest disease activity; awareness of the tension and stress that often accompany chronic illness; and awareness of the best coping strategies and techniques to reduce that stress.
Further Reading . . .
This is one of the most popular books ever written for people who have just been diagnosed with lupus. Written in a warm, engaging style, Coping with Lupus is a guide that will help you cope with the challenges of life with lupus.
But awareness by itself isn’t the complete solution. You will want to use that awareness to plan and to act in ways that limit or avoid the burdens, discomforts, and difficulties that lupus can cause, so that the illness does not stop you from doing the things you enjoy in life. There are also a number of lifestyle adjustments you can make to help keep the physical symptoms of lupus under control. Learn more about lifestyle adjustments in the Coping with Lupus section.
How May Lupus Affect My Life?
Having lupus can make the demands of everyday life challenging. When lupus is active, symptoms of joint stiffness, pain, extreme fatigue, confusion, or depression can make even simple tasks difficult, and sometimes impossible. And, because you may not have any visible signs of disease, the people around you may not realize how much discomfort and pain you are experiencing, or they may not know that you are sick at all.
You should not ignore the limitations that come with this disease. But there are steps you can take to stay active with work, relationships, and events that enrich your life. These actions and strategies can lighten the burden of your illness and allow you to lead a life of accomplishment and achievement.
Explaining Lupus to Others
Explaining lupus is a challenge. It is not easy to describe a disease with symptoms that are so varied and yet often not visible, whose effects can range from manageable to life-threatening, and whose course is sporadic, alternating between periods of wellness and flare. Explaining lupus is made even more difficult because the causes of lupus are unknown.
Lupus in the Family
Family life will inevitably change when a family member receives a diagnosis of lupus. This section looks at how you view yourself, your family, husband and even children and how they view this new journey that they will be taking with you. Open communication within the family about your lupus may help to allay fears and help to foster an understanding and supportive environment for all family affected by the disease.
This disease can be a bitch when you are taking steroids , when i was on high dose’s of steroids i asked my doctor for a Xanax pill..Believe me it works I was less bitchy towards family and friends … have a great Saturday everyone , Denise